It’s been three months since Cameron’s diagnosis of PFAPA. The doctor started him on a regiment of antacids, with the thought that we had to try it out before going to surgery. No one was optimistic of it working, due to his larger-than-normal tonsils and it having a success rate of only 30%.
So I have held my breath for three months. During that time, he only had one fever and the episode was shorter and temperature was lower than his other episodes. I had a hard time believing we could be so lucky after so many fevers.
Cam had a checkup with his specialist Thursday morning, and we left with good news. She was as shocked as we were that the medication was working, and the tonsils have reduced down to a normal size. He will maintain his medication regiment and be monitored periodically to see when he will grown out of PFAPA. Yay for good news!
Our family is not done with Children’s Hospital this month though. It has been a year since Caiden’s surgery, so it is time for his checkup. He is scheduled for a CT scan on Tuesday, and a six-hour appointment with a team of doctors who will asses his development. The team includes specialists from plastic surgery, audiology, speech, child psychology, nursing and dentistry. Hopefully I can update you with positive Caiden news next week. Until then, we will celebrate Cam’s good news!
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